Spotlights
Meet John
John is 5 years old. He is a very happy little boy. John was diagnosed with PHPV when he was 2 weeks old but was diagnosed with CTNNB1 when he was 3. He loves water…
Meet Caleb
Caleb is a happy nine-year-old boy and can be seen with a smile on his face almost all the time! Since his diagnosis of CTNNB1, he has progressed in many ways, including physical, occupational, speech,…
Meet Eleni and Ileana
Eleni (21) and Ileana (7) are both affected by CTNNB1 syndrome. They have three sisters ages 19, 15 and 11 who are not affected. Eleni loves SpongeBob, music, watching signing time and videos on her…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
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