Spotlights
Meet Isaac
Isaac is 7 years old and currently in year 3 at school in the UK. Isaac is the most determined child I have ever met, always pushing himself to do more and try again. He…
Caroline's Story
Our beautiful daughter, Caroline, was born in October of 2014 after a normal and healthy pregnancy. She was a happy and engaged baby, however by eight months she began to miss some of her developmental milestones and exhibited strabismus in one of her eyes.
Meet John
John is 5 years old. He is a very happy little boy. John was diagnosed with PHPV when he was 2 weeks old but was diagnosed with CTNNB1 when he was 3. He loves water…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
Join the Fight
There's a way for everyone to get involved, whether you're a family member, friend, researcher, healthcare provider or other supporter.