Spotlights
Meet Eleni and Ileana
Eleni (21) and Ileana (7) are both affected by CTNNB1 syndrome. They have three sisters ages 19, 15 and 11 who are not affected. Eleni loves SpongeBob, music, watching signing time and videos on her…
Meet Silvia
"Silvia ha 10 anni...e frequenta la scuola primaria. È verbale ..ma presenta ritardo cognitivo... motorio... disturbo del comportamento e deficit dell'attenzione. È molto simpatica e socievole...ma anche molto facile al pianto. Vuole essere sempre al…
Meet Lucy
Meet Lucy! She is one year old and lives in Lakeville, MN. She received her Ctnnb1 diagnosis at just 4 months. Lucy was born with multiple heart defects but luckily her heart has been healing…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
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