Spotlights
Meet Andrew
Andrew Robinson was born on August 23, 2011. He was, to our knowledge, the first to be diagnosed with CTNNB1 Syndrome (at that time there wasn't a syndrome) in 2014 in the United States. We…
Meet Isabella
Isabella is a bright-eyed 4yr old with a contagious laugh. She loves books, music, dancing, playing with her 3 older siblings and any activity that gets her outdoors or in the water. Bella’s favorite activity these…
Meet Mary Kate
Mary Kate is a sweet and sassy 4 year old! She has a love for swimming, swinging, chicken nuggets, honey mustard, and her grandma! She is about to start her third year of preschool, and…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
Join the Fight
There's a way for everyone to get involved, whether you're a family member, friend, researcher, healthcare provider or other supporter.