CTNNB1 Connect & Cure is led by a dedicated team of parents and business professionals and guided by strategic advisors and our Scientific Advisory Board.
Board of Directors
Chief Communications Officer
Ashley Swift
Ashley, mom to Evelyn, is responsible for family onboarding for the CTNNB1
Director of Partnerships
Effie Parks
Effie, mother of 6-year-old Ford, created the podcast, Once Upon A Gene.
President
Emily Amerson
Emily and her husband, Cody, live in Charleston, SC, with their two
Chief Operating Officer
Ashley Hamic
Ashley is mom to Maddox, who has CTNNB1 syndrome, and his super
Director of Technology
Bruno Ramalho
Bruno Ramalho lives in Porto, Portugal, and is the father of Mafalda.
Director of Fundraising
Crawford McWilliams
Crawford McWilliams lives in Orange Beach, Alabama, with her husband, Brenton, and
Chief Financial Officer
Anita Chang
Anita lives in Dallas, TX with her husband John and their dragonfly
Co-Director of Fundraising
Luke Dreckman
Luke lives in Southeast South Dakota with his wife Paetyn. Together they
Support Team
Allen Jun
Anita Jones-Garza
Mariana Parks
Nancy Hall
Stephanie Babcock
Toni Paes
Chief Financial Officer
Anita Chang
Anita lives in Dallas, TX with her husband John and their dragonfly