CTNNB1 Awareness Day Toolkit
July 25 | Together, We Can Make a Difference
CTNNB1 Awareness Day is an opportunity to raise awareness, celebrate our community, and help accelerate research toward treatments and a cure. Whether you’re sharing your story, wearing blue and yellow, or fundraising, every action helps more people learn about CTNNB1 Syndrome.
Here’s how you can get involved:
1. Update Your Profile Picture
Show your support by adding the CTNNB1 Awareness Day Twibbon to your Facebook or X (Twitter) profile picture.
Add your profile frame: Twibbonize https://www.
2. Wear Blue & Yellow
On July 25, wear blue and yellow to show your support for individuals and families living with CTNNB1 Syndrome.
Take a photo and share it on social media using:
#CTNNB1AwarenessDay
#CTNNB1Syndrome
#CTNNB1ConnectAndCure
3. Share Your Story
Your story has the power to educate, inspire, and build awareness.
Share:
Your CTNNB1 journey
A favorite photo or milestone
What you hope people understand about CTNNB1 Syndrome
Why research matters to your family
Don’t forget to tag CTNNB1 Connect & Cure so we can help amplify your story.
4. Follow & Share on Social Media
Help us spread awareness by:
Following CTNNB1 Connect & Cure
Liking and sharing Awareness Day posts
Tagging friends and family
Inviting others to learn more about CTNNB1 Syndrome
Every share helps us reach new families, researchers, clinicians, and supporters.
5. Invite Others to Learn
One conversation can make a difference.
Invite your friends, coworkers, classmates, neighbors, and family members to learn about CTNNB1 Syndrome and the importance of advancing research.
Visit CTNNB1 Connect & Cure to learn more and share our resources. 6. Donate or Start a Dragonfly Fundraiser
Help us reach our $25,000 CTNNB1 Awareness Month fundraising goal!
Every dollar supports:
- Research grants
- New therapy development
- Clinical trial readiness
- Family programs
- Global collaboration
Start your own Dragonfly fundraiser or make a donation today.
Dragonfly Donations | CTNNB1 Connect & Cure https://givebutter.com/
7. Download the Awareness Toolkit Together, We Move Research Forward
Every post, every conversation, every donation, and every act of support brings us one step closer to better treatments—and ultimately, a cure.
Thank you for helping make CTNNB1 Awareness Day a success!