October 8-10, 2026

Boston, MA

We are looking forward to bringing our community together again at the annual CTNNB1 Conference, offering on-site research and bringing together individuals with CTNNB1 syndrome, their families, researchers, and healthcare professionals to discuss the latest advancements, research, and community support.

This year’s event will begin with two days of on-site research activities, including clinical evaluations for the CTNNB1 Natural History Study, biosample collections, and more. These critical research days will be followed by a full day of presentations. The event will conclude with a dinner and dance celebration—an opportunity for the community to come together, connect, and celebrate the progress we’re making together.

Event at a Glance

Thursday, October 8th

On-Site Research Opportunities and Kids Activities

Friday, October 9th

On-Site Research Opportunities and Kids Activities

Saturday, October 10th

Presentations & Sessions followed by the Dinner & Dance Party

Other Important Information

  • Early Bird Pricing ends on August 31, 2026 at 11:59pm EDT.

  • Registration closes on September 18, 2026 at 11:59pm EDT.

  • Hotel and event costs are significantly higher this year. To help assist with any financial barriers, we have created a document that lists potential resources for assistance with travel expenses to the Conference. Additionally, we are offering a way for CTNNB1 families to earn conference tickets through fundraising and securing conference sponsorships.

Thank you for your continued partnership. We can’t wait to connect with you in person this fall!

Questions?
Please email – emily.amerson@curectnnb1.org

Travel

Boston Area Maps and Public Transportation
Directions from Boston Airport
Please book your hotel stay using our room block (link also at the top of this page)

🔍 Looking to explore while you’re there? Here are some of Boston’s top attractions and activities:

Conference Attendance Terms & Conditions

Refund and Cancellation Policy

Due to the amount of pre-paid expenses, we cannot offer ticket refunds. However, if your plans change and you are no longer able to attend after you have registered, please notify us as soon as possible. This will help us manage our resources in the most resourceful way.

Terms and Conditions

Your personal data will be collected to manage your registration and participation in connection with the conference and will be shared with CTNNB1 Connect and Cure and with vendors who are coordinating the logistics for the conference. Your data will not be sold to any third parties.

Audio/Visual Waiver

By registering for the CTNNB1 Conference, all participants, including speakers and attendees, agree to: (a) be photographed, filmed, recorded, or videotaped by a CTNNB1 Connect and Cure representative and other business partners working with CTNNB1 Connect and Cure. Participation in or attendance at this meeting constitutes the voluntary consent of the participant or attendee to: (a) be photographed, filmed, recorded, or videotaped by a CTNNB1 Connect and Cure representative and other business partners working with CTNNB1 Connect and Cure and (b) the reproduction, distribution, and use of all such photographs, digital images, films, voices, recordings, actions, names, and likenesses for any lawful purpose, including for PR or marketing purposes, such as brochures, fundraising, annual reports, media advertising or articles, websites, social networking sites and other print and digital communications, or any other ways that might contribute to the mission of CTNNB1 Connect and Cure, without payment and any other consideration. This authorization extends to all languages, media, formats and markets now known or hereafter devised. This authorization shall continue indefinitely, unless I otherwise revoke said authorization in writing. I understand and agree that these materials shall become the property of CTNNB1 Connect and Cure and will not be returned. I hereby hold harmless, and release CTNNB1 Connect and Cure from all liability, petitions, and causes of action which I, my heirs, representative, executors, administrators, or any other persons may make while acting on my behalf or on behalf of my estate.

Liability Waiver

Attendees, for themselves, their family, successors, and assigns do forever release, waive, discharge, and covenant not to sue CTNNB1 Connect and Cure, its board of directors, board members, officers, agents, servants, affiliates, employees, successors, and assigns (collectively the “Released Parties”) from any and all liability, claims, demands, actions, and causes of action whatsoever, directly or indirectly arising out of or related to any loss, damage, or injury, including death, that may be sustained by me related to my attendance at the 2026 CTNNB1 Conference.

Attendees agree to indemnify, defend, and hold harmless the Released Parties from and against any and all costs, expenses, damages, claims, lawsuits, judgments, losses, and/or liabilities (including attorney fees) arising either directly or indirectly from or related to any and all claims made by or against any of the Released Parties due to bodily injury, death, loss of use, monetary loss, or any other injury from or related to their attendance at the 2026 CTNNB1 Conference.

Code of Conduct

We value the participation of each community member and endeavor to deliver an enjoyable and fulfilling experience. Conference participants are expected to conduct themselves with integrity, courtesy, and respect for others and maintain the highest level of professionalism at all conference programs and events. All attendees, speakers, organizers, volunteers, vendors, and staff at the Conference are required to observe the following Code of Conduct: CTNNB1 Connect and Cure is dedicated to providing a harassment-free conference experience for everyone, regardless of gender, sexual orientation, disability, physical appearance, body size, race, or religion. We do not tolerate harassment of conference participants in any form. All communication should be appropriate for a professional audience, including people of diverse backgrounds and cultures. Sexual language and imagery are not suitable for the Conference. Be kind to others. Do not insult or defame participants. Harassment in any form, such as sexist, racist, or exclusionary jokes, is not condoned at CTNNB1 Connect and Cure events. Participants violating these rules may be asked to leave the Conference at the sole discretion of CTNNB1 Connect and Cure.

All attendees must follow Conference protocols while participating in Conference events and activities. Failure to follow all protocols in effect and required by CTNNB1 Connect and Cure, the venue provider, and governing authorities during the Conference may result in registration cancellation without refund.