Our Mission

CTNNB1 Connect and Cure is a nonprofit organization dedicated to funding research to find treatments and a cure for CTNNB1 to help children live their best lives possible while raising awareness and connecting families.

Our Vision

We aim to find safe and effective treatments to help all children and adults diagnosed with CTNNB1 Syndrome as quickly as possible. We strive to improve all areas of development including gross and fine motor function, language and learning/cognition. We endeavor to create awareness and connect affected families.