We are looking forward to bringing our community together again at the annual CTNNB1 Conference, offering on-site research and bringing together individuals with CTNNB1 syndrome, their families, researchers, and healthcare professionals to discuss the latest advancements, research, and community support.

This year’s event will begin with two days of on-site research activities, including clinical evaluations for the CTNNB1 Natural History Study, biosample collections, and more. These critical research days will be followed by a full day of presentations. The event will conclude with a dinner and dance celebration—an opportunity for the community to come together, connect, and celebrate the progress we’re making together.