ICD-10 Code: Q87.88
ICD-10 Code: Q87.88
CTNNB1 Connect & Cure
Finding treatments and a cure for CTNNB1 Syndrome while raising awareness and connecting families.
What is CTNNB1 ?
CTNNB1 Syndrome is a rare genetic disorder related to the CTNNB1 gene.
How We Help
By funding CTNNB1 research, we are creating a roadmap for a cure.
Family Support
Get connected with other children and parents in the CTNNB1 community.
Help Find a Cure
Learn how to get involved to support research and spread awareness.
Save The Date!
CTNNB1 Connect & Cure Conference – Boston 2026
📍 Boston, MA
📅 October 8–10, 2026
We’re so excited to bring our community together in Boston! Join families from around the world for a special weekend of connection, support, and shared experiences.
More details coming soon.
Partners
