As a 501(c)(3) non-profit organization, we value transparency and accountability in all we do. We are proud to hold a 2023 Gold Seal of Transparency with Candid.

CTNNB1 Connect & Cure is a 100% volunteer-run organization and maintain minimum operating expenses. This allows us to maximize our donors’ contributions toward our goal of funding research for treatments and hopefully a cure for CTNNB1 Syndrome.

Questions? Please contact us at

2023 – 990

2022 – 990

2021 – 990

2020 – 990

2019 – 990

Candid Guidestar Gold Transparency Seal Nonprofit