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Caregiver Resources By State

Click in the middle of a state to be directed to its list of resources.

Disability Access and Opportunities

National Parks and Federal Recreational Lands Access Pass

50% off Amazon Prime for Medicaid Cardholders

Disney World – Disability Access Service (DAS)


Created to help rare families find what they need more easily, Librarey was built from Sierra Phillips’ Disability Resource Guide. It is a search-based platform that brings rare families and researchers together towards the common goal of new treatments.

Courageous Parents Network

We highly recommend Courageous Parents Network, a non-profit organization that equips and empowers parents and caregivers of children with serious medical conditions through a range of resources and tools. These include videos, podcasts, printable guides, Guided Pathways, and blogs, offering insights and perspectives from both families and pediatric clinicians.