From information about disability services to suggested books about inclusion, this page is a collection of materials to help support our CTNNB1 community.

Librarey

Created to help rare families find what they need more easily, Librarey was built from Sierra Phillips’ Disability Resource Guide. It is a search-based platform that brings rare families and researchers together towards the common goal of new treatments.

Courageous Parents Network

We highly recommend Courageous Parents Network, a non-profit organization that equips and empowers parents and caregivers of children with serious medical conditions through a range of resources and tools. These include videos, podcasts, printable guides, Guided Pathways, and blogs, offering insights and perspectives from both families and pediatric clinicians.

Proclamation Requests
Media Coverage
Brochure
Flier
Website QR Code
Signs, Pins, and Other CTNNB1 Merchandise

Inclusion Library

Book links coming soon!



Caregiver Resources By State

Click in the middle of a state to be directed to its list of resources.

Disability Access and Opportunities

National Parks and Federal Recreational Lands Access Pass

50% off Amazon Prime for Medicaid Cardholders

Disney World – Disability Access Service (DAS)