We’d love to have you as part of our community. Check out the various ways to get involved below and help us work toward our vision of a cure for CTNNB1 Syndrome.


Donate Online

When you give to CTNNB1 Connect and Cure (DBA Advancing CTNNB1 Cures and Treatments), you are funding life-changing research. Make a tax-deductible donation online!


Host a Fundraiser

Accelerate our ability to fund cutting edge research by fundraising on our behalf. Host your own event or team up with other families, set up a Facebook Fundraiser and more!


Attend an Event

From fundraisers to community get-togethers, see our upcoming events. No matter where you live, be sure to tune into our Annual Research Conference.



CTNNB1 Connect & Cure depends on the talent and energy of our volunteers to create awareness and fund research for CTNNB1 Syndrome. Sign up to help!


Spread the Word

There are several opportunities throughout the year to celebrate and recognize the CTNNB1 community. Please mark your calendars for:
Rare Disease Day: February 28
CTNNB1 Awareness Day: July 25
Giving Tuesday: November 28

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