Dear Family, Friends, and Partners of CTNNB1 Connect & Cure, In just three days — on July 25th — we’ll be walking, running, and giving for CTNNB1 Awareness Day. CTNNB1 Syndrome is a rare genetic disorder that affects mobility, speech, vision, behavior, intellectual development and independence. There is no cure yet — but there is incredible hope, and a growing global community determined to make a difference.
Every child with CTNNB1 Syndrome deserves the chance to thrive. Let’s walk. Let’s give. Let’s change lives.
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Walk or run 2.5 miles with us
Donate $25, $250, or $2,500 to support life-changing research
Help spread awareness for a rare condition that needs more eyes and hearts on it