Join us for CTNNB1 Connect and Cure’s 2025 Conference right outside of Boston, Massachusetts! As our patient population and community grows, we are excited to offer two days of presentations. Friday, July 11th, will be “Science Day”, where you will hear updates directly from the researchers, clinicians, and experts. Saturday, July 12th, will be “Family Day”, where parents, caregivers, and family members and friends will connect and learn together.
We are co-hosting the event with the MED13L Foundation, the patient advocacy organization for a rare disease that shares many similarities with CTNNB1 Syndrome. The full agenda will include disease-specific topics, shared topics, as well as separate and shared community time. This collaboration allows us to offer much more to our attendees, including meals, convenient on-site biospecimen collection, and meaningful connections in the broader rare disease community.
Schedule of Events
🍇 Thursday, July 10th – Welcome Reception: Enjoy relaxing and connecting with the community while enjoying light snacks and beverages.
🔬 Friday, July 11th – Science Day: Get updates directly from researchers, clinicians, and experts in the field.
💛 Saturday, July 12th – Family Day: Connect, share, and learn alongside parents, caregivers, and loved ones.
🩺 Clinical Research Participation Opportunities for CTNNB1 patients Wednesday, July 9th – Saturday, July 12th (limited patient spots available – please email jessica.waxler@childrens.harvard.edu to sign up)
Full Agenda Coming Soon!
Sponsors Needed!
After making a sponsorship level selection, you will be prompted to choose a payment method. We suggest check payment to avoid transaction fees. If you choose this option, you will be asked for your contact information and the check number. Please make sure you send the physical check in the mail within 10 business days to the address provided.
Sponsorship commitments must be received by April 30, 2025.
Please contact sponsor@curectnnb1.org with any questions.
CTNNB1 Connect and Cure is a 501(c)(3) public charity (EIN 83-4541448).
Travel
🚍 Boston Area Maps and Public Transportation
📍Directions from Boston Airport to Embassy Suites Waltham Hotel
🛏️ Please book your hotel stay using our room block (link also at the top of this page)
🔍 Looking to explore while you’re there? Here are some of Boston’s top attractions and activities:
