2025 CTNNB1 Conference

When

July 10, 2025 - July 12, 2025    
All Day

Bookings

$0.00 - $100.00
Book Now

We are so excited for you to join us! This special two-day conference will bring together individuals with CTNNB1 syndrome, their families, researchers, and healthcare professionals to discuss the latest advancements, research, and community support.

Please book your tickets below according to the number of adults and children who will be attending and on which days.

Schedule Overview
-Thursday, July 10th – Welcome Reception: Enjoy relaxing and connecting with the community while enjoying a variety of beer, wine, and premium spirits paired with light appetizers.
-Friday, July 11th – Science Day: Get updates directly from researchers, clinicians, and experts in the field.
-Saturday, July 12th – Family Day: Connect, share, and learn alongside parents, caregivers, and loved ones.
-Clinical Research Participation Opportunities for CTNNB1 patients will take place Wednesday, July 9th – Saturday, July 12th (limited patient spots available – please email jessica.waxler@childrens.harvard.edu to sign up)

Each Ticket Includes
-Entry on selected day(s)
-Lunch on selected day(s)
-An exclusive conference t-shirt

Other Important Information
-Early Bird Pricing ends on April 30th.
-Registration closes on June 6th.
-Due to the amount of pre-paid expenses, we cannot offer ticket refunds. However, if your plans change and you are no longer able to attend after you have registered, please notify us as soon as possible. This will help us manage our resources in the most resourceful way.
-Though admission costs offset a portion of the overall conference costs, if you are able and would like to fund more of this important event, please consider donating an additional amount or helping us secure sponsorships.

Each $1000 raised by a family through fundraising or sponsorships from January 23, 2025, through April 15, 2025, can qualify for a refund of one 2-day registration fee. Please email your request with proof to fundraising@curectnnb1.org by April 15, 2025. Hosting an event of this scale requires significant resources, and we need your support to make it a success. We are also accepting financial aid requests at info@curectnnb1.org. 

LocationOpen in Google Maps

 

Embassy Suites Waltham
550 Winter Street
Waltham
MA
02451

Bookings

Tickets

Ticket Type Price Spaces
*EARLY BIRD* 2 Day Pass - Friday/Saturday $100.00
*EARLY BIRD* 1 Day Pass - Friday Only $75.00
*EARLY BIRD* 1 Day Pass - Saturday Only $75.00
Child 2 Day Pass (10 and under) - Friday/Saturday $0.00
Child 1 Day Pass (10 and under) - Friday Only $0.00
Child 1 Day Pass (10 and under) - Saturday Only $0.00

Registration Information

Booking Summary

Please select at least one space to proceed with your booking.