Spotlights
Meet Julius
"Julius is our 9 year old rainbow baby. We found out he had CTNNB1 at the age of 3. The first two years of his life, we were pretty perplexed and unaware as to what…
Sean Declan's Story
Our beautiful baby boy, Sean Declan, was born in July 2017 after a completely healthy and uneventful pregnancy. We left the hospital after 24 hours because our three-year-old daughter missed us and wanted to see her new little brother, and home we went.
Meet Carter
"Carter just turned 3 at the end of October. We were fortunate enough to receive his diagnosis very early, at 10 months old. Some of his favorite things are hot wheels, our family dog, and…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
Join the Fight
There's a way for everyone to get involved, whether you're a family member, friend, researcher, healthcare provider or other supporter.