Spotlights
Meet John
John is 5 years old. He is a very happy little boy. John was diagnosed with PHPV when he was 2 weeks old but was diagnosed with CTNNB1 when he was 3. He loves water…
Meet Andrew
Andrew Robinson was born on August 23, 2011. He was, to our knowledge, the first to be diagnosed with CTNNB1 Syndrome (at that time there wasn't a syndrome) in 2014 in the United States. We…
Meet Preston
Preston is 12 years old and is in 6th grade, his first year of middle school! He attends a local public school in the special ed/life skills program, and is a part of his school’s…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
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