Spotlights
Meet Andrew
Andrew Robinson was born on August 23, 2011. He was, to our knowledge, the first to be diagnosed with CTNNB1 Syndrome (at that time there wasn't a syndrome) in 2014 in the United States. We…
Meet George
Hello this is George from the UK. George is 6 years old and he is the happiest little boy! He always has the biggest smile on his face. George loves his family and going to…
Meet Lily
Lily is 6 years old and is heading into first grade in the fall. School is her absolute favorite place to be, which makes sense because she is a total celebrity in the school! We…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
Join the Fight
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