Spotlights

Meet Guillaume

Guillaume is almost 3 and a half, and is a very happy and friendly little boy. He started to walk independently and to talk about 6 months ago, but still struggles with climbing, running, and…

Meet Andrew

Andrew Robinson was born on August 23, 2011. He was, to our knowledge, the first to be diagnosed with CTNNB1 Syndrome (at that time there wasn't a syndrome) in 2014 in the United States. We…

Meet Mae

Hi, I’m Mae and I am 2 years old. I am the big sister to Louise who just turned 1. My mommy and daddy’s names are Emily and Joe, we all live in Minnesota. I’ve…

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