Spotlights
Meet Julius
"Julius is our 9 year old rainbow baby. We found out he had CTNNB1 at the age of 3. The first two years of his life, we were pretty perplexed and unaware as to what…
Meet Silvia
"Silvia ha 10 anni...e frequenta la scuola primaria. È verbale ..ma presenta ritardo cognitivo... motorio... disturbo del comportamento e deficit dell'attenzione. È molto simpatica e socievole...ma anche molto facile al pianto. Vuole essere sempre al…
Meet Jackson
Jackson is 2, he's the happiest lil boy. He's the youngest of 5 kids, he has 1 sister and 3 brothers. Jackson works hard at all his therapies, PT, OT, speech and a school based program 2x per…
Gallery
If you would like your child’s photo(s) added to our website and/or social media platforms, please fill out our Digital Release Form. To update a gallery photo, please email bruno@curectnnb1.org.
Join the Fight
There's a way for everyone to get involved, whether you're a family member, friend, researcher, healthcare provider or other supporter.