Citizen Health, formerly Ciitizen, has launched a brand new onboarding experience – and it’s better than ever!
We’re partnered with Citizen Health to build critical natural history studies for our community – no site visits required! Citizen will do the work to collect your comprehensive medical history into your secure, digital profile and give you the option to contribute your de-identified data to accelerate research. Help our community unlock the insights hiding in our medical data and make huge leaps in understanding our disease and accelerating treatment options like never before. It just takes five minutes, sign up here today!
How does it work?
After you complete a short sign up process, Citizen Health will do all the hard work to collect and centralize all your medical records and provide you access in your secure, digital profile. You control your data and have the option to put your de-identified information towards powering research efforts.
How does this help power research?
The data in our collective medical histories is critical to understanding the disease in order to help researchers design more effective clinical trials. We can get researchers the data they need faster and more easily than ever with Citizen – no site visits required!
What are the benefits to me?
Get all your medical data collected and power research with just one, five minute sign-up. Completely digital—No clinic visit required! Patients then have the ability to share digital records securely with whomever they choose. Do away with the binder and share your medical data with your care-team or other providers digitally. More easily get second opinions and avoid repeat tests!
How do I get started?
Visit our sign up link here!
- Create a profile for yourself or your loved one. Provide a picture of your ID, a few pieces of demographic information and a list of providers where the patient has received care. Guardianship papers will also be needed in the case of a caregiver signing up on behalf of a patient 18 years or older.
- Citizen Health will then do the hard work to collect all your medical data and provide it to you in your secure, digital profile?
Thank you for helping us drive the research forward for treatments for everyone with CTNNB1 syndrome!
