Dear Family, Friends, and Partners of CTNNB1 Connect & Cure,
Today, February 28th, is Rare Disease Day, a day dedicated to raising awareness and offering support to those living with rare conditions. On this special day, we reflect on the experiences of individuals and families impacted by rare diseases, including CTNNB1 Syndrome.
CTNNB1 Syndrome is a rare genetic disorder that affects both children and adults, leading to developmental delays, speech challenges, and difficulties with motor skills. While the journey is difficult, the strength and resilience of those affected by this condition is truly inspiring.
On this Rare Disease Day, we are reminded of the importance of hope, community, and progress. If you feel moved to make a difference, we invite you to donate $28 in honor of February 28th. Your support would help advance research and provide resources for families impacted by CTNNB1 Syndrome, bringing us closer to a future where everyone affected can live a better life.
Donate here!
Thank you for taking a moment today to think of those who face these challenges. Your kindness, in any form, makes a meaningful impact and brings hope to families who need it most.
With gratitude and hope,
CTNNB1 Connect and Cure
P.S. Each act of kindness brings us closer to a brighter future. Thank you for standing with us on this Rare Disease Day!