Are you the caregiver of someone with CTNNB1 syndrome? Join our search for answers by signing up for Simons Searchlight, an international research program with the goal of accelerating science and improving lives for people with rare genetic neurodevelopmental disorders. Your unique experience could hold the clues that scientists need to find treatments and a cure!
Step 1: Sign up at SimonsSearchlight.org
Step 2: Upload your genetic lab report
Step 3: Share medical history
Step 4: Fill out surveys
Step 5: Provide a blood sample
Step 6: Update the information every year
