JULY 25

Walk, Share, Give!

This year, we are encouraging our community, friends and family to:

Walk or run 2.5 miles on Friday, July 25, to raise awareness and hope for those with CTNNB1 Syndrome

Share our posts and your personal story / connection

Give or fundraise in increments of $25, $250, or $2,500

Whatever you choose to do, we’d love to hear from you! Please let us know how you are spreading CTNNB1 awareness or tag us when you post on social media. We’d love to reshare your efforts! If you haven’t already, please fill out the Digital Release Form to give us permission to post photos of your child.