Get Involved – CTNNB1 Connect & Cure

We’d love to have you join our community. Check out the various ways to get involved below and help us work toward our vision of a cure for CTNNB1 Syndrome.

Donate Online

When you give to CTNNB1 Connect and Cure, you are funding life-changing research. Help move our mission forward to help everyone with CTNNB1 Syndrome.

Make a tax-deductible donation

Participate in Research

In order to find treatments and a cure, we need to understand as much as we can about the patient population.

See current research opportunities

Host a Fundraiser

Accelerate our ability to fund cutting edge research by fundraising on our behalf. Host your own event or team up with other families, set up a Facebook Fundraiser and more!

Get started today

Volunteer

CTNNB1 Connect & Cure depends on the talent and energy of our volunteers to create awareness and fund research for CTNNB1 Syndrome.

Sign up to help

Spread the Word

Awareness and advocacy are essential for all of our goals as a community. Will you help us?

Check out our ready-to-use materials

Attend an Event

From fundraisers to family get-togethers to awareness campaigns, our community always has something you can be part of.

View upcoming events