The CTNNB1 Biorepository Roadshow is coming to communities across the United States making it easier than ever for families to contribute samples closer to home. These samples are critical to advancing research and moving us closer to meaningful treatments for CTNNB1 syndrome.
Right now, the greatest needs include: complete family samples (CTNNB1 patient and their sibling or parent), yearly blood samples, and participation from older individuals. Even if you have already contributed samples to the CTNNB1 biorepository, giving samples each year provides invaluable data that helps researchers track changes over time. If you’re planning to attend the October conference, we still encourage you to participate in a Roadshow stop beforehand whenever possible.
To sign up or learn more, please email research@curectnnb1.org
