Any time is a good time to spread awareness for CTNNB1, but there are some special datesthat you should be familiar with: ● February 28 (or 29) - Rare Disease Day● April 25 - DNA Day● July - Disability Pride Month● July 25 - CTNNB1 Awareness Day● Tuesday after Thanksgiving - Giving Tuesday We suggest reaching…
What is a Proclamation? A proclamation is an official document issued by a government official to commemorate a specific time period (ex. day, week, or month) with the goal of honoring and celebrating events or increasing awareness of noteworthy issues among citizens. How to Request a Proclamation Contact the State or Local Government Office - Governors,…
Dr. Michele Jacob at Tufts University and collaborators from Johns Hopkins are working on a novel mRNA approach to help our Dragonflies. This short animation describes this type of treatment. https://youtu.be/nkG1RvnZvPg?si=cecwsoSlenn-Up6v
Tonya is back to explain how a single drug compound could help our Dragonflies. https://youtu.be/-YBIjRnwEeo?si=SlBruZa5VbVL65Vu
CTNNB1, Funding Research, Advocacy, and promoting Awareness. Like, did you know that the number one genetic cause of Cerebral Palsy is CTNNB1 Syndrome? https://youtu.be/g05-YGNVexU?si=ehakhR83wpRTz_Ry