BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.2.3.1//EN TZID:America/New_York X-WR-TIMEZONE:America/New_York BEGIN:VEVENT UID:1@curectnnb1.org DTSTART;TZID=America/New_York;VALUE=DATE:20250710 DTEND;TZID=America/New_York;VALUE=DATE:20250713 DTSTAMP:20250710T235718Z URL:https://curectnnb1.org/events/2025-registration/ SUMMARY:2025 CTNNB1 Conference DESCRIPTION:We are so excited for you to join us! This special two-day conf erence will bring together individuals with CTNNB1 syndrome\, their famili es\, researchers\, and healthcare professionals to discuss the latest adva ncements\, research\, and community support.\n\nPlease book your tickets b elow according to the number of adults and children who will be attending and on which days.\n\nSchedule Overview\n-Thursday\, July 10th – Welcome Reception: Enjoy relaxing and connecting with the community while enjoyin g a variety of beer\, wine\, and premium spirits paired with light appetiz ers.\n-Friday\, July 11th – Science Day: Get updates directly from resea rchers\, clinicians\, and experts in the field.\n-Saturday\, July 12th – Family Day: Connect\, share\, and learn alongside parents\, caregivers\, and loved ones.\n-Clinical Research Participation Opportunities for CTNNB1 patients will take place Wednesday\, July 9th - Saturday\, July 12th (lim ited patient spots available - please email jessica.waxler@childrens.harva rd.edu and CC: lauren@curectnnb1.org to request a spot)\n\nEach Ticket Inc ludes\n-Entry on selected day(s)\n-Lunch on selected day(s)\n-An exclusive conference t-shirt\n\nOther Important Information\n-Early Bird Pricing en ds on April 30th.\n-Registration closes on June 6th.\n-Due to the amount o f pre-paid expenses\, we cannot offer ticket refunds. However\, if your pl ans change and you are no longer able to attend after you have registered\ , please notify us as soon as possible. This will help us manage our resou rces in the most resourceful way.\n-Though admission costs offset a portio n of the overall conference costs\, if you are able and would like to fund more of this important event\, please consider donating an additional amo unt or helping us secure sponsorships.\n\nEach $1000 raised by a family th rough fundraising and/or sponsorships from January 23\, 2025\, through Apr il 30\, 2025\, can qualify for a refund of one 2-day registration fee. Ple ase email your request with proof to sponsor@curectnnb1.org by April 30\, 2025. Hosting an event of this scale requires significant resources\, and we need your support to make it a success. We are also accepting financial aid requests at info@curectnnb1.org. \n\nLocation\n\n \;\n\nEmbassy Suites Waltham\n550 Winter Street\nWaltham\nMA\n02451 ATTACH;FMTTYPE=image/jpeg:https://curectnnb1.org/wp-content/uploads/2024/0 9/Screenshot-2024-09-15-at-1.54.12 PM.png END:VEVENT BEGIN:VTIMEZONE TZID:America/New_York X-LIC-LOCATION:America/New_York BEGIN:DAYLIGHT DTSTART:20250309T030000 TZOFFSETFROM:-0500 TZOFFSETTO:-0400 TZNAME:EDT END:DAYLIGHT END:VTIMEZONE END:VCALENDAR